Contact Information:
Other Fibrosing Mediastinitis Websites:
www.fibrosingmediastinitis.org
Communicating with others:
In 2001 a yahoo group page was started to facilitate conversation for those with Fibrosing Mediastinitis. Over the years the members have come and gone but left behind is a trail of conversations where friendships are made, frustration is shared and hope is evident.
To join the forum go to http://health.groups.yahoo.com/group/Fibrosing_Mediastinitis/
NORD- National Organization of Rare Diseases
NORD is a unique federation of individuals and organizations working together to build a better world for people affected by rare diseases.
A report on Fibrosing Mediastinitis will soon be posted on NORD. Follow the link below and search the rare disease database. A special thank you to Lucille Enix for co authoring the report and to Dr. Loyd for his contribution and review.